By: Raymond Fang, MSc, Director, Data Management & Statistical Analysis, and Keonna Confesor, MS, Data Program Analyst (Coordinator)

In addition to its use in calculating and reporting measure scores as a Qualified Clinical Data Registry (QCDR), the real-world data collected from participating practices through providers’ electronic health systems (EHR) represent more than 10 million patients with various urologic diseases across the country. The data can support health services research to develop disease-specific treatment patterns and identify associations between treatment options and patient outcomes. Real-world evidence helps fill current knowledge gaps and advance the science of urology. All data used for research and publication are de-identified to protect the privacy of participating practices, providers, and patients.

The following publications are just a sample of how the data in the AQUA Registry can be used to help shape the future of urology worldwide. Please send an email to dataservices@AUAnet.org if you are interested in starting a research project using the AQUA data.

Publications:

• Cooperberg MR, Meeks W, Fang R, Gaylis F, Catalona W, Makarov D (2023), Active Surveillance for Low-risk Prostate Cancer: Time Trends and Variation in the AUA Quality (AQUA) Registry, JAMA Network Open, 2023 Vol. 6(30): 1-9.
• Cooperberg MR, Mbassa R, Walker D, Meeks W, Lockefeer A, Jiang B, Li T, Johnston K, Fang R (2023), Insights from the AUA Quality (AQUA) Registry: A Retrospective Study of Anticholinergic Polypharmacy in the United States, Therapeutic Advances in Urology, 2023 Vol. 15 (1-15).
• Dani H, Meeks W, Weiss C, Fang R, Cohen AJ (2022), Patterns of Surgical Management of Male Stress Urinary Incontinence: Data from the AUA Quality (AQUA) Registry, Urology Practice Vol. 10: 66-73, January 2023.
• Lee, D, Shelton J, Brendel P, Doraiswami R, Makarov, D, Meeks W, Fang R, Roe M, Cooperberg M (2021) Impact of the COVID-19 Pandemic on Urological Care Delivery in the United States, Journal of Urology, 206(6): 1469-1479, December 2021.
• Shelton JB, Pichardo D, Meeks W, Suh R, Wood E, Smith N, Nolin M, Ross K, Schlossberg S, Wolf S, Fang R, Cooperberg MR, Characteristics of Participants in the American Urological Association Quality (AQUA) Registry and Early Impact of Participation on Quality of Care, Urology Practice 8(2): 209-216, March 2021.
• Cohen A, Agochukwu-Mmonu N, Makarov D, Meeks W, Murphy J, Fang R, Cooperberg MR, Breyer B, Significant Management Variability of Urethral Stricture Disease in United States: Data from the AUA Quality (AQUA) Registry, Urology, 146: 265-270 August 2020.
• Cooperberg MR, Fang R, Schlossberg S, Wolf Jr. JS, Clemens JQ (2017), The AUA Quality Registry: Engaging Stakeholders to Improve the Quality of Care for Patients with Prostate Cancer, Urology Practice Vol. 4: 30-35, January 2017.